Stories of hope and healing

When YM was two years old, during the uncertainty of the COVID pandemic, our lives changed significantly. For months, I had felt something wasn’t quite right. He wasn’t meeting milestones and wasn’t developing like other children his age. As a mum, you just know. I trusted that instinct and pushed for answers. Genetic testing gave us clarity: YM was diagnosed with GRIN2B-related neurodevelopmental disorder , a rare genetic condition. GRIN2B is a gene located on the 12th chrom

Our child was diagnosed with a genetic condition called MADK8ip3. As a result, our little girl fell behind in her development compared to...